PANS/PANDAS Parent Action Kit
My child’s whole story, birth to now
Child’s name ______________________ Born ____________ Filled in by ______________________ Date ________
How to use this: walk your child’s life in order. Pin everything to an age, a season, or a grade. When two things happened in the same month, write which came first. Nothing is too small — the odd little things are often where the answer is. Pull out old texts, calendars, and photos to find dates.
Every home, in order
Ages lived there · city or country · leaks, water damage, basement rooms, musty smell, renovation
Pets — scratches or bites? Ticks — summer homes, camps, grandparents’, hikes
Better away from a place, worse coming back?
Pregnancy and birth
Illnesses, antibiotics, medicines, vaccines in pregnancy · where you lived, any renovation
C-section, antibiotics in labor, NICU, breathing or feeding problems
Baby and toddler years
Ear infections and how many antibiotic courses · eczema · reflux
Milestones (crawling, walking, first words) · sleep · temperament
The small odd things · any reaction to a medicine or vaccine — what happened, at what age
Each year after
One line per year: illnesses, antibiotics, school, home, family, how your child was doing
Was there a time your child was suddenly different?
The change
Date or season · overnight, over days, or slowly? · the very first things you saw
The days, weeks, and months before: illness, fever, strep at school, injury, a move, a new medicine, a stressor, mold
Your child’s own words (“Mom, I can’t stop”)
Every flare since
Date · what came right before (a cold, a loose tooth, a visit somewhere) · what you tried · what happened
Who else in the house was sick?
The best stretches
When was your child most like themselves? What were they on, or doing, then?
Right now
The three hardest things this month · what sets things off · how often they poop
Everything you’ve tried
Antibiotics, steroids, IVIG, psychiatric medicines, supplements, herbs, homeopathy, diets, therapies. Include the brand and dose. Write what happened in the days after — better, worse, or strange (a child who suddenly sleeps through the night on an antibiotic is telling you something).
| When (age / date) | What (name, brand, dose) | How long | What happened — better, worse, strange |
|---|---|---|---|
Every test that’s been done
Blood work, swabs, stool, urine, scans, sleep studies. “Normal” results matter too — keep the reports.
| When | Test | Result | Do you have the report? |
|---|---|---|---|
Questions worth asking yourself
- Did anyone swab for strep at each sore throat or fever? Has anyone else in the house been tested?
- Has anything ever made my child worse within hours or days of starting it? What did I stop, and what happened?
- What comes right before the rage, tics, or accidents come back?
- Is there anyone my child suddenly can’t stand to be near?
- Do I keep any kind of log — notes app, texts, calendar, a homeopath’s notes? Bring it.
Bring this to every appointment. Free from Plan B for PANS · planbforpans.com